Unlocking the power of data to improve health outcomes: five trends to watch


Unlocking the power of data to improve health outcomes five trends to watch



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Unlocking the power of data to improve health outcomes five trends to watch
health outcomes. That means organizations must identify not only what data they need but also which organizations have it, and are therefore potential partners. In parallel, companies need to invest in, or partner to access, the analytics capabilities that will turn the data into information that can be used at the point of care or in real life to drive economic outcomes. One positive first step there are multiple early signs that companies are looking beyond their historical focus areas to seek new data alliances. Take Roche, which has collaborated with GE Healthcare and acquired Flatiron Health and Foundation Medicine to gain access to data that improve care delivery. Ultimately, these collaborations need to happen at much greater scale to have a transformative impact on health.
The ability to translate data into actionable information that results in smarter product development or better care delivery isn’t a pipe dream. Its already happening. (See Figure 3.) However, the impact has been blunted because most stakeholders are reluctant to freely share their data. Limitations imposed by regulatory frameworks such as the European Unions 2016 General Data Protection Regulation (GDPR) or the 1996 US Health Insurance Portability and Accountability Act (HIPAA) also discourage data sharing. These barriers can be overcome, but only if stakeholders can minimize risk and realize mutual benefits from their data collaborations. Transparency linked to data usage is an important part of the equation. So are the right incentives, regulations and protections. Many people will readily share data if that information directly benefits them in the form of financial or health benefits. However, they do need to feel confident that their data aren’t being misused or accessed under false pretenses. In addition, improving health outcomes is a goal shared by all healthcare stakeholders, whether payers, providers, businesses, patients or caregivers. Focusing on measurable health gains as a shared value can point the way to effective collaboration. In 2018, for instance, the UK National Health Service (NHS) signed an agreement with the health analytics company Sensyne Health to share anonymized, longitudinal data from roughly 300,000 patients The data are intended to drive new insights and treatments, and the NHS will benefit in two direct ways. First, because it has an equity stake in the company, the
NHS will profit when Sensyne does. Second, the NHS will also receive a share of downstream revenues created by the research.

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